Monday, February 8, 2016

What NOT To Say

Having a mastectomy and/or oophorectomy (removal of ovaries) can be very emotional for women, and their spouses, whether the woman has cancer or not. I think this is because the breasts and ovaries/hormones are so connected to woman's femininity and sexuality. And obviously her fertility. These things often define who a woman is, so removing them can be traumatic. It can force a woman to re-evaluate who she is and where she's going from here. It can impact her self image. Women who haven't had these surgeries can't fully understand these deep emotions. They may say something to a friend or family member that is meant as 'look on the bright side', but is actually hurtful. I'd like to give a couple examples of these types of comments that can be insensitive, even if they aren't intended to be so. Also, if the woman having the mastectomy and/or oophorectomy says these things, trying to find some silver lining, that's her prerogative. But let her say it, not you. 

"At least you'll get a boob job out of it!"

This particular comment is THE WORST! I get sick to my stomach when I hear it. It shows a complete lack of understanding about what a mastectomy is. 

A boob job is an incision under the breast, where the scar won't be seen, and inserting an implant. Nothing is removed. The look and feel of the woman's breast tissue is still there. Nipples remain. Sensation remains. I'm not sure about pain or recovery time, but I believe it's generally minimal. At least that's what the radio ads say. 

A mastectomy surgery actually removes ALL the breast tissue. And possibly the nipples. This leaves the woman with skin and empty pockets (if she has skin sparing surgery). Some women choose to not have breast reconstruction, in which case they get stitched up and live their life without breasts. If a woman chooses reconstruction, there are multiple follow up doctor appointments and surgeries. Filling tissue expanders (slowly, a week at a time), pain from stretching the chest muscle that the implant will eventually fit beneath, drains that remove fluid from the cavity as healing takes place, limited arm mobility and use, exchange surgery to replace expanders with the implants, surgeries to correct symmetry, fat grafting to help with skin ripples, possible nipple reconstruction, nipple tattoos, dealing with a variety of complications and infections, scarring from incisions that aren't hidden, and a future of implant replacement every 10 years or so. Plus, the womans breasts, nipples, and chest wall are now numb, forever. 

If a woman who is having a mastectomy chooses to be excited about reconstruction and getting implants, good for her. But let HER say that. I, on the other hand, am mourning the loss of my natural breasts and would prefer to just keep them, as they are. 

"Hey, no more periods! Or birth control!"

I feel very fortunate that I was able to have my 3 beautiful babies while I was young. I was also blessed with peace and knowledge that our family was complete after our third child. It wasn't very difficult for me to cope with losing my fertility. But, most women are not so lucky. 

Many women wrestle with the right timing to remove their ovaries. They live with fear of getting cancer, with doctors telling them the dangers or keeping their ovaries past 35. They know they can't do much to screen for ovarian cancer. But they desire to have babies. This is especially difficult for women who haven't married yet. They also have to make tough decisions about harvesting and preserving their eggs. Which is difficult, expensive, and not always successful in producing a future baby. 

I FEEL for these women!!! I can't imagine never having felt a child grow inside me. Or the exhilaration of birthing my babies. Most women consider periods a welcome nuisance in exchange for the opportunity to be pregnant someday. 




Mastectomy Sensitivity

Imagine you are on board an airplane, ready for a journey. The pilot gets on the intercom and says this: "We have run the numbers and thought we'd bring some information to your attention. This particular flight path has been flown thousands of times before, and 87% of the time, the plane crashes. About 9 out of 10 times. Sometimes it crashes in the beginning of the flight. Sometimes in the middle or towards the end. But if you take this journey, you too have an 87% chance of crashing. You may not die in the crash, but really, we just don't know. There are so many unknown factors. Most other planes, other flights, only crash 1 out of 10 times. But that's not the plane you are on. So, think about it. Make the decision that is best for you. There is still time for you to get off the plane, if you choose."

The above scenario is how many women with the BRCA gene mutation feel. And I, myself, have chosen to get off the damn plane! The trouble is, there are often reactions from family/friends of "Why the heck would you have a mastectomy when you don't have breast cancer!?" As if we haven't given this huge decision an incredible amount of thought and research. It's hurtful to hear people say things like that. This decision never comes without a lot of heartache and emotion. So, for those of you who don't agree with my choice, I will try to be understanding of your opinion. But, please don't criticize my decision. 

(Side note: Most of the people I have discussed this with are kind, understanding, and supportive. I don't want to give the impression that there are lots of people criticizing my choice to have a mastectomy. I'm just trying to open minds, for those who haven't thought about this before.)

Saturday, January 30, 2016

Create

Puppies

The new favorite game at our house; puppies! We play fetch, eat puppy chow, scratch bellies, etc. Wintertime fun :)

Asian Soup

I made real life dinner! Which included cutting veggies and a stove and everything! First time post-op. It made me feel more normal, which was nice :) And everyone in my family liked it! That's a win. 
This ended up being a combination of a few different recipes. And I didn't keep measurements. But here's an idea:


Sleep

I'm a night owl. Wish I wasn't. It's been my "goal" to try harder and change this part of me for quite some time now. It's hard. To change. But I'll keep trying. I want to be one of those awesome people who can go to bed at 9:30pm and wake up at 5:30. And to make matters worse, I'm not sleeping well since surgery/menopause. So I think I subconsciously don't want to go to bed because I know the night will be rough. Sigh. 

Teach Them

My hope...

Politics

Dinner

Sometimes, after having surgery, you decide to feed your kids hot dogs, and donuts, for dinner. Because you're tired. And haven't been grocery shopping. And it's what you have. And you know they won't fight you about it. And then you throw in a few veggies to make yourself feel better. The end. 

Monday, January 25, 2016

The Lower Lights

I'm in love with this music group. The Lower Lights. YouTube search them and a play list of their stuff will pop up. Brightening my day today :) This ones my fave: